My Chaotic Life Update

[elsieshaye]

I feel sad for your DH, but SO GLAD SD is out of y'all's hair.  You're right that it wasn't really going to end any other way, and it's what I call "optional stress."  It's not stress caused by unavoidable things like natural disaster or illness, it's stress caused by someone's chosen behaviors.  Sending you my best vibes for your nerve tests, and also sending them to FDIL.  She sounds like a real gem.  (((Pooh)))

[Pen]

Pooh, what a ride! Time for some Pooh/DH time. Congratulations on upcoming GC and your loving new FDIL. Life is full of surprises, eh? Please take care, hope all goes well w/the doc.

[Pooh]

The nerve tests weren't awful, but we're not fun either! Lol.  I was supposed to be able to call yesterday and he said they would tell me something, short and sweet.  "Everything looks normal, we see a problem with...." and was going to send the full report to my MD.  I called, and they were very apologetic that their entire computer system decided to go pppfffttt.  She said they couldn't access anything and could I please call back today as someone was supposed to be there late yesterday to fix it.  So hopefully, I'll know something today.

On a great note (finally), there is a specialist that I have been debating on going to see.  He's 10 hours away and is supposed to be the foremost authority in the South on what I have.  Just found out, he is giving a patient education seminar this Saturday about an 1 1/2 from me, so me and hubby registered.  I'm hoping to learn something as no one near me has a clue about my disease.  I don't blame them, as it's so rare, but it's frustrating.  At the very least, I'm hoping to get a sense from him if it would be worth spending the money and time to make the trip now.

[elsieshaye]

That's great about the specialist, Pooh!  Keeping fingers crossed that you get useful results from the testing and that their darned computer system is up today.

[Pen]

Pooh, the seminar sounds good. Are you feeling hopeful? We'll be thinking of you

[Pooh]

Hey guys.  Got the results back.  They said that there is no definative nerve damage.  That's good, but bad...Lol.  I was hoping they saw something that they could fix, dang it!  Just means it is all related to my morphea and muscle damage, so nothing can be done.

I am hopeful Pen that I will learn something. Since no one seems to know much about it (Doctors), I'm hoping he says something like, "Don't let them tell you there is nothing you can do to help.  You can XXXXXXX."  Something I can bring back to my MD, or something that does warrant the trip.  I know it's not curable, but I can't imagine there is nothing you can do to alleviate some of the symptoms.

YS deployed yesterday morning   I'm very proud of him, but it's going to be a long year.  On a positive note, I was texting back and forth with FDIL who was with him.  She texts me after they left and was so upset, bless her heart.  We went back and forth for awhile, then out of the blue she writes, "I have a question.  Would you like to go to my ultrasound with me when it comes up?"  I about fell out of my chair and wrote back that I would love to, but only if she was comfortable with it.  She wrote back that she wanted me there and wanted me and DH to be involved, that she really appreciated our support and loved us very much.   

So although a sad day, she made it better with her kindness.

[luise.volta]

Oh, Pooh - the bitter and the sweet. Sending love...

[Pooh]

Thanks Luise.  He wasn't supposed to go for a couple of more weeks and then he called, blam...gone.  It's weird though.  I'll worry about him, but after my tears yesterday, I actually felt better now that it's done.  I guess I was dreading it more than I knew. 

[luise.volta]

Waiting can be deadly. I remember...(it just seems like a few years ago)...when Dwight, my eldest joined the Marine Corps and was sent to Viet Nam.

[Pooh]

Oh wow.  How tough for you!

[constantmargaret]

When difficult teens leave home, it's hard when you realize you DON'T miss them... (ok maybe a little)
Life has a way of growing us up. Your SD is no exception. All but one of my  teenagers left with a huge BANG! (door slamming)  The other one is 26 and won't leave.    All but the youngest have come back, no apologies, but a bit humbled.

I wonder if your condition will calm down now that the stress level in the home has come down?

I am very happy for you that your FDIL is awesome. I am fortunate my DS's fiancee is a darling too. Congrats, FGM!

I hope your DS will be home safe and sound very soon.

[lancaster lady]

These things are sent to try us Pooh , and you've had your fair share lately .
Hoping for better times ahead for you and yours ....

[Pooh]

Thank you very much LL.

CM, I don't miss her...isn't that awful?  I miss what "could have been".  The first couple of months, she was on her best behavior....I miss that.  She was good to be around then and we had alot of laughs.  As soon as she started reverting to her her "normal" behavior, it was nothing but stress.  I do think my condition will calm down now as things settle back in.  95% of my stress has been dealing with her and her Mother/SF the last few months, plus the stress it has been having the last couple of months on me and DH.  Glad you have a good FDIL too!

[Pen]

Pooh, your FDIL sounds like a real sweetheart It's good to have happy things to look forward to and loving people in your life. I hope your year flies by and all is well with one and all.

[forever spring]

Pooh, I hope the year will go quickly. I'm so pleased to hear that your FDIL is like a ray of light now in what must be a very difficult time for you and your family. I'm thinking of you and send my sincere best wishes into cyber space.